ShareTheCaregiving: a program of the National Center for Civic Innovation

What Professionals Say

 

FEEDBACK FROM SHARE THE CARE TRAINING PARTICIPANTS

 

“Sheila Warnock’s book Share The Care will lead the national hospice movement to its next step, meeting the needs of the millions of Americans living alone who will need hospice care. Her work is groundbreaking.”                                               

Deborah Duda, Author
Coming Home, Caring for a Dying Loved One

 

“Share the Care is a very creative approach to helping families overwhelmed with the tasks of caring for an ill or ailing loved one. Sheila’s simple program makes it easy for churches and other civic groups to create circles of support.

Family caregivers are the unpaid labor force of the health care system. They provide their family member with continuity of care across multiple settings throughout the illness trajectory. (As one advocate observed, patients are often sent home from the hospital with instructions given to the family caregivers that are so complicated, they would leave a nursing student shaking in her boots.)

With Share the Care, communities can step in to handle the more routine tasks of housekeeping and meals, so that families can do what they need to do and still have energy left over to laugh together, express their love and, eventually, say good-bye.”

        Natasha Beauchamp ·

 

“It is wonderful to have a new method of assisting families with caregiving issues. The model is very clear and comprehensive with a lot of room to adjust for individual situations.”

RN, Adult Day Care Center

 

“Excellent seminar – superb presenter whose mission in life is CLEAR. Keep doing what you’re doing – bringing this gospel to everyone, everywhere.”

Social worker

 

“The personal stories put a real face on this model. All of your examples and stories are from the heart to the heart. Because this is about part of life – several times I was reminded of situations, people in my own community, pieces of this model that already are happening – but the model seems to pull those pieces together and tap into the power of a group, the gifts that each person brings to the group, and how to make caregiving a sustainable and blossoming proposal.”

Activity Director Residential Care Home

 

“This was a wonderful seminar. The personal stories and videos were wonderful and it makes all the difference in knowing it really works.”

Social Worker in LTC facility

 

“Very empowering. As we baby boomers age, we will need to take care of each other because there is going to be a serious shortage of health care professionals. Plus with recent government budget cuts, agencies aren’t going to be able to provide the same level of service. We will have to depend on volunteers.”

RN

 

“Excellent workshop. Very real practical information. This type of care can certainly enrich the lives of so many – whose only alternatives may be institutionalization.”

Home Health RN & Case Manager

 

“I liked having an opportunity to participate in a mock group because ideas and possibilities expanded as the group explored the needs.”

Volunteer Coordinator

 

“The exercise about working as a team around a specific case was eye-opening in all the multiple needs that can come up and how do you encompass all of that. I found the story buildup and history also important to make the experience complete.”

Client Services Manager, for HIV/AIDS

 

“Such a wonderful experience in caring for our fellow human beings. Outstanding example of high quality human service.”

RN

 

“The presentation was inspiring, uplifting, full of wonderful ideas, well-timed breaks, well organized presentation. Sheila has a great speaking style – held my interest throughout – so much interesting and useable information.”  

                                                                       Community Outreach Worker

“The encouragement and the practical suggestions of Share The Care are making the difference between my wife, Betsy, spending her last years in a nursing home and spending her last years in our home, surrounded by people (Team Betsy) who love her.“

                                                 Richard Baer, RN, M.Ed., Denver Hospice    

An excerpt from Daniel Goleman’s Social Intelligence.
Bantam Dell, 2006 (page 237) (with permission)

Chapter 16 – Stress Is Social

(From last sub-section – Social Epigenetics)

“Collective social intelligence can offer an alternative to the overwhelming toll of caregiving.  Witness the scene in Sandwich, New Hampshire, where Philip Simmons sat in his wheelchair on a brilliant fall day, surrounded by friends and neighbors.  At age thirty-five Simmons, a college English teacher with two small children, had been diagnosed with the degenerative neurological condition Lou Gehrig’s disease and given two to five years to live.  He had already outlived his prognosis, but now the paralysis was moving from his lower body to his arms, making him unable to perform even routine tasks.  At this point he gave a friend a book called Share The Care, which describes how to create an ongoing support group for someone with a severe illness.

Thirty-five neighbors rallied to help Simmons and his family.  Coordinating their schedule largely by phone and email, they acted as cooks, drivers, babysitters, home aides – and, as on that fall day, yard workers–for the last several years of Simmons’s life, until he died at age forty-five.  This virtual extended family made an immense difference for Simmons and his wife, Kathryn Field.  Not least, their help enabled Field to continue her work as a professional artist, easing the financial strain and giving the entire family, in her words, “a sense of being loved by our community.”

As for those who formed FOPAK (Friends of Phil and Kathryn), as they called themselves, most agreed that they were the ones receiving the gift.

 

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“I think the (STC) book was the best piece of information we received in all our searching.  It is the greatest and I recommend it to everyone who asks about our situation.  I wish that all hospitals could hand it out when they give you a diagnosis for ALS.  I wish you could get a grant to have it placed in every hospital waiting room and doctor’s office.  Everyone knows someone who could benefit from reading it.”

Kathryn Field, FOPAK