Share The Care™ - How to Organize A Group to Care for Someone Who Is Seriously Ill
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Resources

We are very fortunate these days to have organizations and community support for specific illnesses and the elderly in need of assistance. Serious illnesses make complex demands on caregivers; particular disease and conditions make particular demands as well. The following is a list of where your Share The Care™ group can find applicable information to fit the particular needs of your loved one and the group.

Click on the title below to download a helpful booklet.

Caregiving Booklet from EmblemHealth and NAC: Care for the Family Caregiver: A Place to Start(Download is in PDF format)

Click on an organization’s name below to visit their site.

AARP- American Association of Retired People
AARP: Benefits - QuickLINK- Locate Public Benefits in your state
AARP: Prepare to Care - Planning Guide for Families- Booklet
Aging with Dignity- Five Wishes Document
Aging Solutions - Aging Parents and Elder Care
Alliance for Aging Research
ALS Association, The - Amyotrophic Lateral Sclerosis Association
ALS Division - MDA - Amyotrophic Lateral Sclerosis division of MDA
Alzheimers Association
American Academy of Hospice and Palliative Medicine (AAHPM) - to raise awareness of the benefits of hospice and palliative medicine, and help patients and families find the care they need
American Brain Tumor Association
American Brain Tumor Foundation
American Cancer Society
American Diabetes Association
American Hospice Foundation
American Heart Association
American Kidney Fund
American Liver Foundation
American Lung Association
American Parkinson Disease Association
Annie Appleseed project - Help for cancer patients and their advocates
Breast Cancer Network of Strength- Formerly Y-ME Breast Cancer Org.
California Caregiver Resource Centers- Resource center for California caregivers
Candlelighters Childhood Cancer Foundation
Cancercare, Inc.
Cancerandcareers
Cancer Decisions - research and alternative treatments
Cancer Kids - helps children with Cancer tell their stories
Cancer Shock- Diagnosis
Care.com - local Senior Care Directory in a wide range of cities
Caregiver Exchange - Canadian Resources, Events and more
Caregiver Survival Network - Caregiver's community and resources
CaringBridge - free website for family/caregivers/patients
Caring From A Distance - Resource for Long Distance Caregivers
Caring Today - online magazine
Centers for Medicare and Medicaid Services
Children of Aging Parents
Christopher & Dana Reeve Foundation
Colon Cancer Alliance
Compassionate Care ALS
Corporate Angel Network, Inc.- Flights on corporate planes for cancer patients
Disability.gov- Online Resource for People with Disabilities
DOROT – NY Seniors/caregivers/volunteers
DyingWell
Elder Abuse and Neglect- Links from basic understanding to resources
ElderCare Online
ElderHope
Empowering Caregivers
Family Caregiver Alliance
Fighting Chance - life skills for cancer patients
Friends In Deed - In New York City-support for illness/grief/caregivers
Gay Men’s Health Crisis
Gail Sheehey (AARP)– The Labyrinth of Caregiving
Gift From Within- Post Traumatic Stress Disorder
Gilda’s Club
Get Palliative Care – definition, information, and Provider Directory by state
Gillette Women’s Cancer Connection
Healthfinder
Health Library - University of Cincinnati - Cancer Information
Hospice Education Institute
Hospice Foundation
Hospice Web - Hot links
Huntington's Disease Society of America
Kidney Cancer Association
Kids Health - Cancer Center- Parent information
Kids Konnected- Children whose parent has cancer support
Leukemia & Lymphoma Society, The
Life Guide: Children and Cancer- LifeInsurance.org informational options
LightBridge Healthcare Research- educational resources for Alzheimer's disease caregivers
Lupus
MedicalAssistant.net's Alzheimers research page- resources for Alzheimer's disease caregivers
Medicare: The Official U.S. Government Site for People with Medicare
Medicare and Medicaidtools, information and materials - NEW!
Medicare Rights Center- A national , non-profit consumer service organization that includes these sites: Metlife (click on Meeting Life and then - Health)
Mesothelioma - Mesothelioma Information Center
Mesothelioma - Online Information & Resource site
Mesothelioma and Asbestos Awareness Center
Mesothelioma and Asbestos Resource Center - Free information package available, some web content contains video narration
Multiple Sclerosis Foundation
Multiple Sclerosis Association
Muscular Dystrophy Association
National Alliance for Caregiving
National Cancer Institute
National Caregiving Alliance
National Family Caregivers Association
National Hospice and Palliative Care Organization - advance directives, living wills
National Marfan Foundation
National Multiple Sclerosis Society
National Ovarian Cancer Coalition
National Organization for Empowering Caregivers - NOFEC
National Resource Center on LGBT Aging - Lesbian, Gay, Bisexual and transgender (LGBT) older adults
National Resource Directory- Services and resources for wounded, ill and injured service members, and veterans, their families and families of the fallen.
National Stroke Association
New York City Family Caregiver Coalition
New York Foundation for Senior Citizens - (All NYC Boroughs) Free Emergency Respite for caregivers of Frail Elderly
NEXT STEP IN CARE - United Hospital Fund
'On Our Own Terms' Bill Moyers Special
Parkinson’s Disease Foundation
Patient Advocate Foundation (PAF)
- legal counseling, referrals, financial issues for cancer patients
Paying For Senior Care- Understand your financial options for long term care. Use the FREE Eldercare Financial Resource Locator Tool
Planet Cancer - Young adults and children with cancer
Ronald McDonald House – housing during hospital car
Silvert's Adaptive Clothing for ElderlyCare
Social Securtity and Disability Resource Center- social security disability and SSISocial Securtity Disability Secrets
Spinal Cord Injury Information Network - resources for equipment/accessibility
Strength for Caring - the comprehensive web site of The Caregiver Initiative of Johnson & Johnson
Surviving Mesothelioma: A Patient's Guide - Free copies of "Surviving Mesothelioma" are available to newly diagnosed mesothelioma patients
Susan G.Komen Breast Cancer Foundation
thehealthline.ca - Health services in South West Ontario
Today's Caregiver Magazine
University of Wisconsin Comprehensive Cancer Center
US TOO! International, Inc. – prostate cancer support
Well Spouse Association - for spousal caregivers.
Wisconsin Alliance for Family Caregiving
Womens Cancer Network

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1995 Cover design and illustration by Mullen & Katz
2004 Cover Design by Jennifer Lew
Website design & execution : Creative Art Link