Share The Care™ - How to Organize A Group to Care for Someone Who Is Seriously Ill
Resources

We are very fortunate these days to have organizations and community support for specific illnesses and the elderly in need of assistance. Serious illnesses make complex demands on caregivers; particular disease and conditions make particular demands as well. The following is a list of where your Share The Care™ group can find applicable information to fit the particular needs of your loved one and the group.

Click on the organization’s name you will be linked to their site.

AARP- American Association of Retired People
AARP: Benefits - QuickLINK- Locate Public Benefits in your state
AARP: Prepare to Care - Planning Guide for Families- Booklet
Aging with Dignity- Five Wishes Document
Aging Solutions - Aging Parents and Elder Care
Alliance for Aging Research
ALS Association, The - Amyotrophic Lateral Sclerosis Association
ALS Division - MDA - Amyotrophic Lateral Sclerosis division of MDA
Alzheimers Association
American Brain Tumor Association
American Brain Tumor Foundation
American Cancer Society
American Diabetes Association
American Hospice Foundation
American Heart Association
American Kidney Fund
American Liver Foundation
American Lung Association
American Parkinson Disease Association
Annie Appleseed project - Help for cancer patients and their advocates
California Caregiver Resource Centers- Resource center for California caregivers
Candlelighters Childhood Cancer Foundation
Cancercare, Inc.
Cancerandcareers
Cancer Decisions - research and alternative treatments
Cancer Shock- Diagnosis
Care.com - local Senior Care Directory in a wide range of cities
CaringBridge - free website for family/caregivers/patients
Caring From A Distance - Resource for Long Distance Caregivers
Caring Today - online magazine
Children of Aging Parents
Christopher Reeve Paralysis Foundation
Colon Cancer Alliance
Compassionate Care ALS
Corporate Angel Network, Inc.- Flights on corporate planes for cancer patients
DOROT – NY Seniors/caregivers/volunteers
DyingWell
ElderCare Online
ElderHope
Empowering Caregivers
Extra Hands for ALS - teen/young adult volunteer program to help ALS people with ALS
Family Caregiver Alliance
Fighting Chance - life skills for cancer patients
Friends In Deed In New York City-support for illness/grief/caregivers
Funeral Directory, The
Gay Men’s Health Crisis
Gilda’s Club
Get Palliative Care – definition, information, and Provider Directory by state
Gillette Women’s Cancer Connection
Healthfinder
Hospice Education Institute
Hospice Foundation
Hospice Web - Hot links
Huntington's Disease Society of America
Kidney Cancer Association
Kids Konnected Children whose parent has cancer support
Leukemia & Lymphoma Society, The
LightBridge Healthcare Research- educational resources for Alzheimer's disease caregivers
Lupus
Medicare and Medicaidtools, information and materials - NEW!
Medicare Rights Center
Metlife (click on Meeting Life and then - Health)
Multiple Sclerosis Foundation
Multiple Sclerosis Association
Muscular Dystrophy Association
National Alliance for Caregiving
National Cancer Institute
National Caregiving Alliance
National Family Caregivers Association
National Hospice and Palliative Care Organization - advance directives, living wills
National Multiple Sclerosis Society
National Ovarian Cancer Coalition
National Stroke Association
National Organization for Empowering Caregivers - NOFEC
New York Foundation for Senior Citizens - (All NYC Boroughs) Free Emergency Respite for caregivers of Frail Elderly
"On Our Own Terms" Bill Moyers Special
Parkinson’s Disease Foundation
Patient Advocate Foundation (PAF) - legal counseling, referrals, financial issues for cancer patients
Planet Cancer - Young adults and children with cancer
Ronald McDonald House – housing during hospital care
Silvert's Adaptive Clothing for ElderlyCare
Social Securtity Disability Secrets
Spinal Cord Injury Information Network - resources for equipment/accessibility
Strength for Caring - the comprehensive web site of The Caregiver Initiative of Johnson & Johnson
Susan G.Komen Breast Cancer Foundation
Today's Caregiver Magazine
University of Wisconsin Comprehensive Cancer Center
US TOO! International, Inc. – prostate cancer support
Washingtonian Online – Breast cancer help
Webdirectives Advance care, end-of-life care planning
Well Spouse Association - for spousal caregivers.
Wisconsin Alliance for Family Caregiving
Womens Cancer Network
Y-ME Breast Cancer Organization


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2004 Cover Design by Jennifer Lew
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