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ShareTheCaregiving: a program of the National Center for Civic Innovation

2015 Thank you & Appeal

SHARETHECAREGIVING INC. A PROGRAM OF
THE NATIONAL CENTER FOR CIVIC INNOVATION

 

The industry of healthcare is mandated to find ways to deliver quality, safe care in an efficient manner.  Share The Care enables us to meet that challenge without sacrificing the humanity needed to be patient/family centered.”
(Quoted from an STC professional user) PhD, RN-BC
Whether you are a caregiver, a group member, a health professional or a community please consider the ways STC has impacted your life, your work and your community for the better and take action to support our mission.
With only 3 days left before the New Year please consider a tax-deductible donation to STC especially if you have never gifted us before.
Help get STC off to a rousing start in 2016 and build on the considerable momentum gained in 2015.

Your support helped us to

accomplish so much in 2015

As our work continues to touch the lives of so many around the world, we ask for your support now.  Please consider a tax-deductible donation of $100$500 or $1,000 (or whatever you can afford) to help us to expand and sustain our efforts.  Please give generously online at: www.sharethecare.orgor if you prefer to give by check please make it payable as listed below and mail it to the address shown.
ShareTheCaregiving/NCCI 
C/o The National Center for Civic Innovation – 6th floor
121 Avenue of the Americas
New York, NY 10013-1590
You can even make a significant donation to STC as a whole group.  Please visit our website DONATE page that lists a variety of ways people can give.And now you can support us by doing your online Holiday (or anytime) shopping or travel reservations through our website.
EVERY DOLLAR COUNTS – YOUR GIFTS ARE TAX DEDUCTIBLE   
We always welcome your STC group photos and stories for the website. They really do inspire others. Please help us gain visibility and “LIKE US” on Facebook: Share The Care™ and: Twitter ShareTheCareOrg
With gratitude, and best wishes for a Healthy, Happy New Year.
 Sheila
Sheila Warnock
Founder & President
Your tax-deductible donations will cover our conference fund allowing us to travel and present the STC model and research at highly visible conferences. Also to cover the cost of books, printing brochures and creating new program materials.  My computer is over 12 years old and needs to be replaced.

End of Year Accomplishments & Appeal

SHARE THE CARE™
HAS BEEN WORKING FOR 20 YEARS!!!

OVER THE YEARS YOUR SUPPORT has allowed us to evolve from a guidebook to a non-profit organization that continues to help care recipients, their caregivers and families at a vulnerable time by providing a tried and true plan for their relatives, friends and neighbors to help them. In fact, the recent STC research that included participants from the US, Canada and Australia confirm the benefits to everyone involved in a STC group.
“Having the different experiences spread around so nobody got really burnt out made our connection with each other on the team and with our friend just kind of one of grace, one of beauty, instead of obligation.”
~ Share The Care Group Member
Structured Interview, 2014
As we end 2015, STC is being used for a new State Initiative in Wisconsin that will focus on supporting people who live alone with early stage Alzheimer’s Disease.  Our next professional training is scheduled for December at North Shore-LIJ Stern Center for Rehabilitation in Manhasset, New York. We alsolearned that at the NYS Caregiving Respite Conference in Albany this month, the STC presentation rated “highest in relevance” for the 118 participants – caregivers and health professionals from throughout New York State.
We are optimistic about 2016, especially since we have recently welcomed three new Board members.  Our goal now is to step back and take an objective look at all we’ve accomplished and with the help of our Board, Steering Committee, Advisory Board, donors, caregivers, STC groups and volunteers chart a roadmap for the coming years.
As the STC model continues to touch the lives of so many around the world, we ask you to take action now.  Please consider a tax-deductible donation of$100, $500 or $1,000 to help us grow and expand our efforts.  Please give generously online at: www.sharethecare.org or if you prefer to give by check please make it payable as listed below and mail it to the address shown.
ShareTheCaregiving/NCCI 
C/o The National Center for Civic Innovation – 6th floor
121 Avenue of the Americas
New York, NY 10013-1590
You can even make a significant donation to STC as a whole group.  Please visit our website DONATE page that lists a variety of ways people can give.And now you can support us by doing your online Holiday (or anytime) shopping or travel reservations through our website.
EVERY DOLLAR COUNTS – YOUR GIFTS ARE TAX DEDUCTIBLE   
 
We always welcome your STC group photos and stories for the website. They really do inspire others. Please help us gain visibility and “LIKE US” on Facebook: Share The Care™ and: Twitter ShareTheCareOrg
With gratitude, we wish you and yours a Healthy and Joyous Holiday Season,
 
 Sheila
Sheila Warnock
Founder & President
Your tax-deductible donations will cover our conference fund allowing us to travel and present the STC model and research at highly visible conferences. (Our abstract has already been accepted by four.)  Also to cover the cost of books, printing brochures and creating new program materials.  My computer is over 12 years old and needs to be replaced.
hands-divider

Your support helped us to
accomplish so much in 2015

CONFERENCES & TRAININGS

2015 NYS Caregiving & Respite Conference
Albany, NY
Final Transitions Conference Death, Science and Conciousness
Tucson, AZ
 
7th Annual Palliative Care Conference
Molloy College, NY
Pemphigus and Pemphigoid Conference
NY, NY
 
STC Professional Training
Baraboo, WI
Wausau, WI 
 
STC Professional Training
The Stern Family Center for Rehabilitation, Manhasset, NY 
 
IFC – 3rd World Congress on Integrated Care
Mexico City, MX
The Baraboo_ WI STC Training
The Baraboo, WI STC Training to kick-off a new state-wide initiative using STC to support people living alone with early stage Alzheimer’s Disease or dementia.
STC in Wausau_ WI
Training in Wausau, WI


This year we
introduced our First
STC Newsletter. People
tell us that they love our
Newsletter. We enjoy being
able to engage more often
with our STC caregivers and
groups as well as health
professionals, corporations
and faith communities.
STC RESEARCH

STUDY TOP LINE!

 
Share The Care™
  • increases the caregiving preparedness of group members
  • supports a care receiver’s ability to stay at home
  • is replicable, can be applied across multiple settings & circumstances
  • ensures longevity through its structured system of care
  • helps reduce the burden of the caregiver
  • has a positive impact on
    everyone involved
“It was the most rewarding experience of my life. It proved that I could contribute so much without feeling overwhelmed or overburdened. It taught me to trust others, to know the real meaning of “team work.”
Emotionally, being able to choose to help according to my strengths and to “pass the buck”where I felt I was weak was a Godsend.”
~ Research Participant
hands-divider
Today_s Caregiver Award
BEST MEDIA  WEBSITE

THE MAGGIE KUHN AWARD

 In April Sheila was honored with the prestigious
Maggie Kuhn Award by 
Presbyterian Senior Services 
for her vision, leadership and dedication to help caregivers.

Elizabeth Dole Foundation Fellowship Applications

 The Elizabeth Dole Foundation is now accepting applications for our 2016 class of Dole Caregiver Fellows!

The Dole Caregiver Fellowship provides those caring for wounded, ill and injured service members and veterans the opportunity to advise national leaders through the Foundation’s network of public, private and nonprofit organizations providing services to caregivers.

Caregivers can click here to apply, or visit the Elizabeth Dole Foundation’s homepage at ElizabethDoleFoundation.org. The application deadline is October 1, 2015.

Members of the 2015 fellows class stood on stage with First Lady Michelle Obama and VA Secretary Robert McDonald at the Foundation’s Hidden Heroes Coalition Summit to share how caring for a wounded warrior has impacted their lives.  They carried their message to Capitol Hill during nearly 150 meetings with Members of Congress. In February, fellows attended a Foundation gathering of more than 100 leaders in the areas of caregiving, veterans’ issues and volunteering to give their perspective on how the nation could provide better support to military caregivers. And in their home states, the fellows served as ambassadors and organizers, developing connections among caregivers and educating local associations, community groups and businesses.

Please help us give caregivers a voice by sharing this application with your communities.

We are seeking applications from those caring for service members and veterans from both pre- and post-9/11 generations. The application website lists which states currently have openings. Successful applicants for the 2016 class will raise awareness of caregiver issues as part of the Foundation’s Hidden Heroes Campaign, chaired by Tom Hanks.

Thank you for your continued support!

Steve Schwab
Executive Director
The Elizabeth Dole Foundation

Dole-footer

STC EXCITING RESEARCH NEWS!

The STC research study has been completed providing confirmation of what we have been saying about the STC experience for the last 20 years. We can now describe STC as an “evidenced-informed model.” (See below)

A HUGE THANK YOU to all of the STC care recipients, caregivers and group members from the US, Canada and Australia who participated in this important study. It could not have happened without you!   And we truly appreciate all the groups out there using STC to help more and more people who need caregiving support. BRAVO.

Unless you are in the healthcare field this study may not seem like a big deal, but for STC, it should help to open more opportunities for funding and programs so that we can reach, teach and help many more caregivers everywhere.

The Call to Action

Our job now is to get the word out to professionals.

Researcher, Amy Hegener and I need to present “SHARE THE CARE™ – An Established Model Supported by Research and Practice”at important conferences in late 2015 – into 2016 and have submitted abstracts.

Society for Social Work and Research
20th Annual Conference – Washington, DC

3rd World Congress on Integrated Care
International Conference – Mexico City

American Society on Aging
2016 Aging in America – Washington, DC

HealthCareChaplaincy 3rd Annual “Caring for the Human Spirit”
Global Conference – San Diego. CA

NOW, AFTER A YEAR OF HARD WORK to reach this point, we really need everyone’s support to cover our conference fees and travel.
 
THE GOAL IS $14,000

Please donate online at www.sharethecare.org or if you prefer by check. Your can make a donation in honor of a friend or loved one. If you are in a STC group this is a great reason for a group donation.

Or If you prefer send us a check payable to ShareTheCaregiving/NCCI and mail it to:

ShareTheCaregiving Inc.
c/o The National Center for Civic Innovation – 6th Floor
121 Avenue of the Americas
New York City, NY 10013-1590

YOUR GIFTS ARE TAX DEDUCTIBLE. Please include your name and address so we can properly acknowledge your gift and; if you would like to be kept informed of STC news, your email address. As always your group stories and photos for our website are always encouraged and welcome.

THANK YOU!!!
ONWARD, UPWARD!

Sheila 

Sheila Warnock

About the Research

The STC program is supported by a descriptive evaluation using a non-experimental mixed-methods design. The study sample was purposive and included a total of 143 participants from around the US, Canada and Australia. Data were collected via an online survey and through follow-up phone interviews.

The following research questions were addressed:

  1. Is participation in STC associated with a reduced level of burden for the primary caregiver and/or other family members?
  2. Is there an association between participation in STC and improved confidence in caregiving skills among group members?
  3. Is there a relationship between the shared experience and group members’ satisfaction?

The findings of this study suggest that the STC program is positively associated with the following outcomes:

  • contributing to a reduced level of burden among caregivers;
  • supporting a care receiver’s ability to stay at home with necessary supports, thereby decreasing the potential for reliance on more costly formal systems;
  • adding to or improving the well-being of participants, by remaining focused on a distinct psychological structure;
  • enhancing the caregiving skills of participants by preparing them for future caregiving situations; and
  • demonstrating variability that can be applied across settings and cultures.

These findings provide a foundation of supportive evidence that confirms STC as a best-practice model in the field of caregiving and one that can be replicated in a cost-effective manner across locations and challenges.  The results of this study further indicate that STC is effective in addressing a number of different challenges, whether short or long in duration.

It was the most rewarding experience of my life. It proved that I could contribute so much without feeling overwhelmed or overburdened.

It taught me to trust others, to know the real meaning of “team work”.

I think the military must be something like a Share the Care group — each member depending on the others and trusting with their whole hearts that they were supported. Emotionally, being able to choose to help according to my strengths and to “pass the buck” where I felt I was weak was a Godsend.”

– Research Study Participant

September 11-13th – Final Transition Conference in Tucson, AZ

STC at the ‘Science, Death, and Consciousness’ – Conference

FTMain-photo

Do you have more questions than answers about the end of life? Few topics are as full of myth and mystery in our culture as end of life discussions and experiences. And few topics are as present and pressing to Baby Boomers than the end of life. The Final Transition Conference introduces science where there had been speculation. It also introduces good research where there mainly had been rumination.

Limited spaces will also be available at the conference for those interested in CEUs and CMEs. The Final Transition Conference will also be streamed live for those who are unable to attend.

Presenting at the conference will be:  Stephan A. Schwartz, Sheila Warnock, Betsy MacGregor MD, Cynda Rushton PhD/RN, Sharon Murfin, Barbara Dossey RN/PhD, Pim van Lommel MD, Larry Dossey MD, Peter Fenwick MD, Julie Beischel PhD, Jim Tucker MD, and Marilyn Schlitz PhD.”

STC Website wins Today’s Caregiver Magazine Award!

… and the Award from Today’s Caregiver Magazine’s
2015 Caregiver Friendly® website goes to…

2015CaregiverFriendlyAwardLogo

STC website homepage

Today’s Caregiver, the first national magazine for all family and professional caregivers, and caregiver.com  announce the 2015 Caregiver Friendly® Award recipients.  The Caregiver Friendly® Awards are designed to celebrate products, services, books and media created with the needs of caregivers in mind.

“HOW WE CAN HELP YOU?” is the theme of our NEW  sharethecare.org  web site. It was designed so that our varied caregiving audiences can locate the information they need about our highly regarded group caregiving model-Share The Care™.

Easy-to-navigate and color-coded for:
  • Caregivers & Concerned Friends
  • Health Professionals
  • Faith Communities and
  • Corporations
Visit for: information, resources, 23 forms, links to purchase book, videos, group stories, trainings, workshops, presentations and support.
About The Caregiver Friendly Awards:
Caregiver Friendly® Awards are presented by Today’s Caregiver magazine to celebrate outstanding books, media, products and services designed with the best interest of the family caregiver in mind. Today’s Caregiver magazine, launched in 1995, is published by Caregiver Media Group, which also produces the Fearless Caregiver Conferenceswww.caregiver.com and The Fearless Caregiver book which teaches caregivers how to become their loved one’s fearless advocates within the healthcare system.

Wounded Warriors

wounded warriors
 waldorf Astoria
Thanks to our friends and supporters at Ventura Associates, I was able to attend the Wounded Warriors Courage Awards on Thursday, May 28th at the Waldorf Astoria in New York City.
It was a moving and incredibly inspiring event.  I had the opportunity to thank and speak with many of our brave warriors and their caregivers. I was especially touched by their individual enthusiasm to reach out to help other warriors and older veterans from other wars.
Take a look at the Wounded Warriors Project video on their website & facebook pages (links below) to learn more about the organization and the strides they have made to support our youngest generation of Wounded Warriors
Sheila

7th Annual Palliative Care Conference

 On Friday, May 29th Sheila had the honor of being the closing session speaker for the

7th Annual Palliative Care Conference at Molloy College in Rockville Centre , NY.

Approximately 400 health professionals from local and surrounding communities, as well as some students were In attendance.

Phyllis Quinlan, PhD., RN-BC, Louis Cino, Dean of Molloy College and Sheila Warnock

Phyllis Quinlan, PhD., RN-BC, Louis Cino, Dean of Molloy College and Sheila Warnock

Phyllis Quinlan, who is on the Board of the College and also received several degrees from the College, introduced Sheila to the conference audience.

Earlier in the day before her lecture, Sheila was able to sit in on a workshop led by Phyllis  “How To Sustain the Joy in Being a Professional Caregiver.” 

Attention Nurses:  check out her Blog:

http://careforthecaregiver.me/2015/05/16/healthcare-system-fail-is-this-why-nurses-are-overwhelmed-a-guest-post-by-colin-baird/

“One Cut, One Life” showing in Los Angeles

one-cut-one-life-556x514

Heralded by critics and health professionals alike, “One Cut, One Life,” is a complex, intimate film about some of the conversations in life we typically avoid the most, about death, dying, end-of-life. It is playing at the Laemmle Music Hall for a limited engagement from June 12th through June 19th.

The film follows seminal documentary filmmaker Ed Pincus, as he weighs the impossible choices about end of life care and debates how to spend his final seasons, days, hours.  Should he have a risky bone marrow transplant, or opt for a “normal spring and summer”? At what point should he cease treatment? Can he balance his dying wish of making a last film against his wife’s on-again, off-again resistance to the project, and his desire for “family time”?  Pincus and his fellow award-winning documentary filmmaker, Lucia Small, forge a raw yet surprisingly humorous exploration of the human condition, examining the meaning of life, not only at the end, but during. Co-director Small will be attending for select Q & As.

www.onecutonelife.com

“One Cut, One Life” on Facebook – https://www.facebook.com/onecutonelife?fref=ts

Purchase your tickets for this limited runhttps://www.laemmle.com/search?q=One+Cut+One+Life&x=0&y=0

See the trailer: http://www.firstrunfeatures.com/onecutonelife.html

 

Here is what some health professionals and critics are saying:

“As much as the film is shadowed by a keen awareness of morality, ‘One Cut, One Life’ often pulses with an almost ecstatic vitality.” – Stephen Holden, Critic’s Pick, New York Times

“A stunning doc of living while dying.” – Diana Clarke, Critic’s Pick, Village Voice

“Beautifully illustrates the complex and nuanced nature of end of life decision making for terminally ill patients and their loved ones. I highly recommend it to health care professionals.”  — Judith Schwarz, MSN. PhD, Clinical Coordinator of End of Life Choices New York

“One Cut, One LIfe” is an invaluable resource for any healthcare professional involved in helping patients have difficult conversations about navigating choices at the end of life, or helping people to articulate what is important to them, or to provide models for people wanting to create something or leave legacies for posterity. It is also a frank look at how people move through grief when the loss is sudden and traumatic.”  — Goldie Eder, LICSW, BCD

“”One Cut, One Life” provides an insightful glimpse into the emotional conflicts and difficult choices patients must face when confronted with their own mortality.”
Robert Soiffer, M.D. Dana-Farber Cancer Institute