ShareTheCaregiving: a program of the National Center for Civic Innovation

Resources

 We offer links to RESOURCES that target a vast variety of specific illnesses, and challenges, as well as helpful information, services and support.

Click on the title below to download a helpful booklet.
Caregiving Booklet from EmblemHealth and NAC:
Care for the Family Caregiver: A Place to Start” in PDF format

Click on an organization’s name below to visit their websites.

A Place for Mom– Housing Resources

AARP – American Association of Retired People

AARP: Benefits – QuickLINK – Locate Public Benefits in your state

AARP: Prepare to Care – Planning Guide for Families – Booklet

About Assisted Living – Resource for caregivers and individuals who are looking for information on assisted living in their state.

Aging with Dignity – Five Wishes Document

Aging Solutions – Aging Parents and Elder Care

Alliance for Aging Research

ALS Association – The Amyotrophic Lateral Sclerosis Association

ALS – MDA – MDA / ALS News Magazine Current Research

Alzheimers Association

Alzheimers Foundation

Alzheimers.net– Resources

American Academy of Hospice and Palliative Medicine (AAHPM) – to raise awareness of the benefits of hospice and palliative medicine, and help patients and families find the care they need

American Brain Tumor Association

American Cancer Society

American Childhood Cancer Organization formerly Candlelighters Childhood Cancer Foundation

American Diabetes Association

American Hospice Foundation

American Heart Association

American Kidney Fund

American Liver Foundation

American Lung Association

American Parkinson Disease Association

Annie Appleseed project – Help for cancer patients and their advocates

California Caregiver Resource Centers – Resource center for California caregivers

CAN – Caregivers Action Network – Formerly National Family Caregivers Association

Cancercare, Inc.

Cancer and careers

Cancer Decisions – research and alternative treatments

Cancer Kids – helps children with Cancer tell their stories – Site retired – Archived stories still available

Care.com – local Senior Care Directory in a wide range of cities

CaringBridge – free website for family/caregivers/patients

Caring From A Distance – Resource for Long Distance Caregivers

Caring Today – online magazine

Centers for Medicare information for Caregivers and Medicaid Services

Christopher & Dana Reeve Foundation

Colon Cancer Alliance

Compassionate Care ALS

Corporate Angel Network, Inc. – Free flights on corporate planes for cancer patients

Disability.gov – Online Resource for People with Disabilities

DOROT – NY Seniors/caregivers/volunteers

DyingWell

Elder Abuse and Neglect – Links from basic understanding to resources

ElderCare Online

ElderHope

Empowering Caregivers

Family Caregiver Alliance

Fighting Chance – life skills for cancer patients

Gay Men’s Health Crisis

Gail Sheehey (AARP) – The Labyrinth of Caregiving

Gift From Within– Post Traumatic Stress Disorder

Get Palliative Care – definition, information, and Provider Directory by state

Healthfinder

Health Library – University of Cincinnati – Cancer Information

Hospice Education Institute

Hospice Foundation

Huntington’s Disease Society of America

IPPF: International Pemphigus & Pemphigoid Foundation – information and support

Kidney Cancer Association

Kids Health – Cancer Center – Parent information

Kids Konnected – Children whose parent has cancer support

LeiomyosarcocomaNews on causes and preventitive treatments for Leiomyosarcoma

Leukemia & Lymphoma Society, The

Life Guide: Children and Cancer – LifeInsurance.org informational options

LightBridge Healthcare Research – educational resources for Alzheimer’s disease caregivers

Lupus

Medicare: The Official U.S. Government Site for People with Medicare

Medicare and Medicaid tools, information and materials – NEW!

Medicare Rights Center – A national , non-profit consumer service organization that includes these sites:

Metlife – Health Advice and resources

Mesothelioma – Mesothelioma Information Center

Mesothelioma – Online Information & Resource site

Mesothelioma and Asbestos Awareness Center

Mesothelioma and Asbestos Resource Center – Free information package available, some web content contains video narration

Mesothelioma Guide – Take Control of your Prognosis

Mesothelioma Help

Multiple Sclerosis Foundation

Multiple Sclerosis Association

Muscular Dystrophy Association

National Alliance for Caregiving

National Brain Tumor Society

National Cancer Institute

National Caregiving Alliance

National Hospice and Palliative Care Organization – advance directives, living wills

National Marfan Foundation

National Multiple Sclerosis Society

National Ovarian Cancer Coalition

National Resource Center on LGBT Aging – Lesbian, Gay, Bisexual and transgender (LGBT) older adults

National Resource Directory – Services and resources for wounded, ill and injured service members, and veterans, their families and families of the fallen.

National Stroke Association

Navigating Grief: A guidebook for Grief Awareness & Understanding

New York City Family Caregiver Coalition

New York Foundation for Senior Citizens – (All NYC Boroughs) Free Emergency Respite for caregivers of Frail Elderly

NF Mid-Atlantic – A comprehensive resource for Neurofibromatosis

NEXT STEP IN CARE – United Hospital Fund

NYC PARTNERSHIP 4 FAMILY CAREGIVING CORPS– Corporate caregivers

‘On Our Own Terms’ – Bill Moyers Special

Parkinson’s Disease Foundation

Paying For Senior Care – Understand your financial options for long term care. Use the FREE Eldercare Financial Resource Locator Tool

Planet Cancer – Young adults and children with cancer

Presbyterian Senior Services – Circle of Care

Ronald McDonald House – housing during hospital care

Silvert’s Adaptive Clothing for ElderlyCare

Social Securtity and Disability Resource Center – social security disability and SSI

Social Securtity Disability Secrets

SouthWesthealthline – Canadian Resources, Events and more

Spinal Cord Injury Information Network – resources for equipment/accessibility

Strength for Caring – the comprehensive web site of The Caregiver Initiative of Johnson & Johnson

Surviving Mesothelioma: A Patient’s Guide – Free copies of “Surviving Mesothelioma” are available to newly diagnosed mesothelioma patients

Susan G.Komen Breast Cancer Foundation

thehealthline.ca – Health services in South West Ontario

Today’s Caregiver Magazine

Theravive – network of therapists and counselors

University of Wisconsin Carbone Comprehensive Cancer Center

US TOO! International, Inc. – prostate cancer support

Veteranaid.org – Eligibility Calculator for ‘Aid & Attendance Benefit’

Well Spouse Association – for spousal caregivers.

Wisconsin Alliance for Family Caregiving

Womens Cancer Network

Wounded Warrior Project – Wounded Warrior Project is a military and veterans charity service organization empowering injured veterans and their families.

Zweena Health –  a PHR that contacts healthcare providers and collects, digitizes & stores your health records for you.