We offer links to RESOURCES that target a vast variety of specific illnesses, and challenges, as well as helpful information, services and support.
Click on the title below to download a helpful booklet.
Caregiving Booklet from EmblemHealth and NAC:
“Care for the Family Caregiver: A Place to Start” in PDF format
Click on an organization’s name below to visit their site.
A Place for Mom– Housing Resources
AARP – American Association of Retired People
AARP: Benefits – QuickLINK – Locate Public Benefits in your state
About Assisted Living – Resource for caregivers and individuals who are looking for information on assisted living in their state.
Aging with Dignity – Five Wishes Document
Aging Solutions – Aging Parents and Elder Care
ALS Association – The Amyotrophic Lateral Sclerosis Association
ALS – MDA – MDA / ALS News Magazine Current Research
American Academy of Hospice and Palliative Medicine (AAHPM) – to raise awareness of the benefits of hospice and palliative medicine, and help patients and families find the care they need
American Childhood Cancer Organization formerly Candlelighters Childhood Cancer Foundation
Annie Appleseed project – Help for cancer patients and their advocates
California Caregiver Resource Centers – Resource center for California caregivers
Cancer Decisions – research and alternative treatments
Cancer Kids – helps children with Cancer tell their stories – Site retired – Archived stories still available
Caregiver Exchange – Canadian Resources, Events and more
CaringBridge – free website for family/caregivers/patients
Caring From A Distance – Resource for Long Distance Caregivers
Caring Today – online magazine
CLINICAL TRIALS – CANCER: Clinical trial research and opportunities change frequently. Below are links to a database of all available bladder, kidney, and prostate trials in the Mid-Atlantic. Patients can browse trials by cancer type, and even filter results based on specific factors related to their diagnosis and prior treatments.
— Bladder Cancer Trials http://www.gumdroptrials.org/bladder-cancer-trials/
— Kidney Cancer Trials http://www.gumdroptrials.org/kidney-cancer-trials/
—Prostate Cancer Trials http://www.gumdroptrials.org/prostate-cancer-trials/
Disability.gov – Online Resource for People with Disabilities
DOROT – NY Seniors/caregivers/volunteers
Elder Abuse and Neglect – Links from basic understanding to resources
Fighting Chance – life skills for cancer patients
Gift From Within– Post Traumatic Stress Disorder
Get Palliative Care – definition, information, and Provider Directory by state
Health Library – University of Cincinnati – Cancer Information
Home Security List – How to make a home safe for loved ones with with Alzheimer’s or Dementia
IPPF: International Pemphigus & Pemphigoid Foundation – information and support
Kids Health – Cancer Center – Parent information
Kids Konnected – Children whose parent has cancer support
Leiomyosarcocoma – News on causes and preventitive treatments for Leiomyosarcoma
Life Guide: Children and Cancer – LifeInsurance.org informational options
LightBridge Healthcare Research – educational resources for Alzheimer’s disease caregivers
Medicare: The Official U.S. Government Site for People with Medicare
Medicare and Medicaidtools, information and materials – NEW!
Medicare Rights Center – A nonprofit consumer service organization that works to ensure access to affordable health care for older adults and people with disabilities that includes these sites:
— Medicare Interactive – Free online resource
— Medicare Rights University – Subscription based training resource for professionals
— Dear Marci – A free Medicare Rights monthly newsletter of your questions answered
Metlife – Health Advice and resources
Mesothelioma – Mesothelioma Information Center
Mesothelioma – Online Information & Resource site
Mesothelioma and Asbestos Resource Center – Free information package available, some web content contains video narration
Mesothelioma Guide – Take Control of your Prognosis
Mesothelioma Treatment Community – Nonprofit Resource & Information Center
National Council for Aging Care‘s- Guide on Military Veteran Benefit Options
National Hospice and Palliative Care Organization – advance directives, living wills
National Resource Center on LGBT Aging – Lesbian, Gay, Bisexual and transgender (LGBT) older adults
National Resource Directory – Services and resources for wounded, ill and injured service members, and veterans, their families and families of the fallen.
New York Foundation for Senior Citizens – (All NYC Boroughs) Free Emergency Respite for caregivers of Frail Elderly
NF Mid-Atlantic – A comprehensive resource for Neurofibromatosis
NEXT STEP IN CARE – United Hospital Fund
NYC PARTNERSHIP 4 FAMILY CAREGIVING CORPS– Corporate caregivers
‘On Our Own Terms’ – Bill Moyers Special
Paying For Senior Care – Understand your financial options for long term care. Use the FREE Eldercare Financial Resource Locator Tool
Planet Cancer – Young adults and children with cancer
Ronald McDonald House – housing during hospital care
Social Securtity and Disability Resource Center – social security disability and SSI
Spinal Cord Injury Information Network – resources for equipment/accessibility
Strength for Caring – the comprehensive web site of The Caregiver Initiative of Johnson & Johnson
Surviving Mesothelioma: A Patient’s Guide – Free copies of “Surviving Mesothelioma” are available to newly diagnosed mesothelioma patients
thehealthline.ca – Health services in South West Ontario
Theravive – network of therapists and counselors
US TOO! International, Inc. – prostate cancer support
Veteranaid.org – Eligibility Calculator for ‘Aid & Attendance Benefit’
Well Spouse Association – for spousal caregivers.
Wounded Warrior Project – Wounded Warrior Project is a military and veterans charity service organization empowering injured veterans and their families.
Zweena Health – a PHR that contacts healthcare providers and collects, digitizes & stores your health records for you.