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Archive For: Seeking Groups

Looking for MS Caregivers

Is looking for MS Caregivers to Get Engaged
in Merck’s Global MS Care Partner Initiative
Deadline to Participate: June 22, 2018
In partnership with IACO and Eurocarers, EMD Serono/Merck KGaA has launched a global advocacy project – MS Care Partner Initiative – to spotlight the common challenges of the carers or care partners providing care to persons living with multiple sclerosis (MS). One of the primary goals of the initiative is to address the availability and provision of supports and services to MS Care Partners, as well as the means of guidance on the standards of self-care and care for the care recipient.
To capture all the important aspects of caregiving for a person with MS, EMD Serono/Merck KGaA invites case studies/real-life stories and experiences from a variety of carers within the MS community (spouse, parent, child, carers of diverse cultural, linguistic, and other backgrounds, etc.) to be featured in a global MS survey report and/or the ‘By Day, By Night’ campaign. As part of the initiative, both positive and negative stories are welcomed, in order to illustrate the realities and the challenges of being an MS care partner. If you would like to be a part of this very important global project and would like to have your story featured in the report, please contact the team at FleishmanHillard Public Relations & Digital Marketing Agency at merck.care.partner@fhflondon.co.uk by June 22.

New York Post seeking STC group helping a cancer patient.

NY Post  Header / Logo

This is to be an article on the people you can surround yourself with to help you with your diagnosis/treatment/recovery. A kind of “it takes a village” look at cancer. It may be something that people end up doing intuitively, but we hope this will help those who need some structure after receiving scary news, or fill in the holes for others. I’ll want to talk to you about your “team,” which may include a doctor network; a bff; a patient advocate (sometimes provided by hospital if you ask); a personal advocate to make and take you to appointments; a chemo buddy; a recovery group.

Requirements: 
Lives in the tri-state area and kicked cancer with the help of a team of friends/advocates/doctors with specific goals/duties
Send to:
Heidi Mitchell, New York Post
Category: Lifestyle and Fitness 

Media Outlet: New York Post

Deadline: 7:00 PM EST – 20 April 


THANK YOU.   Please share with those you think may qualify and be interested.

More Participants wanted!

ATTENTION

All Current or (Recent Past) Share The Care™ Groups

We are reaching out to you for two different research projects:

1.  We would like to find several participants from the same STC group (current or recent past) to offer their feedback in an ongoing STC research study.  The method for responding to the research questions allows each person to do so separately from other group members and at one’s own convenience. 

Please send your email address directly to researcher. Amy Hegener, at amyksnyder78@gmail.com with “SAME STC GROUP” in subject line.

2.  If you are a STC group member or family caregiver currently (or in recent past) providing support for someone with Alzheimer’s Disease or Dementia we need your perspective via an online questionnaire and/or a telephone conversation, scheduled at your convenience. 

This informal research could be very beneficial for an upcoming program to help STC groups supporting someone with early onset Alzheimer’s Disease.

Please send your email address to swarnock@sharethecare.org with “ALZHEIMER’S STC GROUP” in the subject line.

 THANK YOU to those of you that have already signed up. Letting you all know that you can sign up for more than one project – and thanking you for your important work to help a loved one or friend and for sharing information that will help so many other people and STC groups.

 

Important STC Research Study

CALLING ALL STC GROUPS PAST and PRESENT

YOUR INPUT IS NEEDED FOR AN IMPORTANT RESEARCH STUDY

STC SURVEY CLICK ON THE LINK THAT BEST DESCRIBES YOUR ROLE

Your Role

Caregivers/Family

Group Members

Care Receivers

The survey should take less than 10 minutes and your responses are confidential.

Amy Hegener, LMSW, a doctoral student from the University at Albany is conducting this evaluation of Share The Care (STC) to establish an evidence-base that supports STC as a best practice model for innovative caregiving strategies.  If you have questions on the research study, you may contact Amy directly.

If you would like more information and the printable version of the survey as a PDF, please click here to access it.

THANK YOU.

DO YOU KNOW OTHERS WHO COULD PARTICIPATE IN THIS STUDY? CLICK HERE: to download a PDF invitation to participate in Research Study for them.