- /Archive by category ' Sheila’s Thoughts '
Archive For: Sheila’s Thoughts
WISCONSIN’S LOSS WILL BE OREGON’S GAIN
From Sheila Warnock
In 2001 I heard from Claire Culbertson who, at the time, was working at the University of Wisconsin’s Comprehensive Cancer Center. She called to ask permission to use our Share The Care™ (STC) model for a program to help women with breast cancer.
A year later, late in 2002, as I was planning to start our non-profit organization, she was the first person to say “count me in” and then she flew to New York to show she meant it. That was 13 years ago and since then she has literally brought the “heart of Share The Care” to the entire State of Wisconsin. We treasure her passion, hard work, and especially her friendship. Now Claire and her husband, Michael, will be moving to Oregon and Wisconsin’s loss will surely be Oregon’s gain…and now STC’s Volunteer Outreach Director for the Northwest!
We want to acknowledge the magnificent contributions Claire has made to STC. In 2011 I was in Wisconsin to train, and every time I turned around I met yet another incredible person who had started or been in a STC group not once, but more often, several times. Claire has also started and served in several STC groups for close friends of her own. In fact, the last one she organized is for a woman in her 90’s who is in good health, but living alone in a rural area. She will surely benefit greatly from the support of her own “created family” nearby.
Claire brought and taught the STC model throughout the state of Wisconsin. She didn’t follow a road map, she built the road as she traveled. In her own words she describes the journey:
From Claire Culbertson
University of Wisconsin Comprehensive Cancer Center (UWCCC 1999-2002) I learned about Share The Care™ from a co-worker who organized a STC group for one of their former colleagues. I asked Lisa about it one day when she had a copy of the book with her. She explained the process they followed directly from the book. That was my first introduction into the world of caregiving!
My role at the UWCCC was as an Outreach Specialist doing community outreach and education related to breast health. The UWCCC had a grant from the Susan G. Komen Breast Cancer Foundation to train women in breast cancer prevention techniques.
As the grant winded down, we looked for other opportunities for community outreach. We decided to shift our focus to cancer survivorship, utilizing the STC model to provide support and assistance to women undergoing breast cancer treatment and recovery. The Susan G. Komen Breast Cancer Foundation once again funded our idea to design and implement an outreach program utilizing the STC model.
Simultaneously, we wrote a grant to the American Cancer Society to introduce the STC model to health professionals and faith communities in Wisconsin. We recognized these groups of professionals were in a position to identify women (and men) in need of extra support, and we could reach a larger audience this way. It was at this time that I contacted Sheila Warnock and made her aware of our work.
We enlisted the support of a hospital Clinical Social Worker who knew a patient (an unmarried, single woman) that was utilizing STC, and her friend (who was the “Captain” of her group), to help illustrate how her STC was a great support to her during treatment and beyond. We traveled to several hospitals around the State of Wisconsin to offer presentations to nurses, social workers and chaplains about the benefits of a STC group to patients and families.
What was crucial to the success of the UWCCC program was the participation of members of an actual group, as well as my direct knowledge of how a STC group operates. I became part of “Michelle’s Group”, visiting her and meeting other group members. I saw first hand how instrumental the group was in serving not only her physical, but also her emotional needs. We documented Michelle’s STC group and their journey on the DVD available for purchase through https://www.sharethecare.org
Area Agency on Aging of Dane County National Family Caregiver Support Program (NFCSP 2003-2012)
After leaving the UWCCC, I began working as the NFCSP Program Manager, launching the new federal program designed to provide education and support to families caring for the 60+ population of disabled and older adults. STC was a perfect companion to the other resources available through NFCSP. I continued to speak about the STC model at local, state and national conferences.
Greater Wisconsin Agency on Aging Resources (GWAAR 2011-2014)
In 2011, I was hired in a part-time role by GWAAR to introduce STC to Wisconsin Aging & Disability Resource Centers, and in particular, National Family Caregiver Support Program Coordinators and Caregiver Coalitions.
Initially, GWAAR brought Sheila to Wisconsin to train 50 people who were to be part of the effort and to introduce the new concept and advertising behind STC™ Stations. She shared the advertising designed to make a community aware of the model and direct them to a local person for information or coaching.
Then, I traveled the state training qualified individuals to become STC™ Station “Managers” – a role in which they assist families in starting a STC group for someone they know and care about. Once again, the Caregiver Coordinators and Information & Assistance Specialists were in a position to recognize when a family can use the extra support and care. We held regularly scheduled conference calls so all the managers in different parts of the state could exchange ideas and information. They also benefited from presentations given on these calls by professionals with a specific expertise like marketing or Alzheimer’s Disease.
We are proud to report, that as a result there are now 15 STC Stations in Wisconsin communities. See the GWAAR website below for a list of Stations and a map with their locations: http://gwaar.org/for-professionals/family-caregiver-support-for-professionals.html#STC
CLAIRE, THANK YOU FOR YOUR ENORMOUS CONTRIBUTIONS
TO GROWING THE SHARE THE CARE MODEL IN WISCONSIN.
Get ready, Oregon, here she comes.
An article by Sheila Warnock, American Women in Science Magazine (AWIS)
Spring Issue, Vol. 45
If you live alone, you have probably had thoughts flash through your mind like “If I fell in the shower and hit my head, how long would it take for someone to miss me?” or “What if I were seriously injured or ill… who would take care of me?”
March 15, 1988 will forever be etched into my memory. It was that cold, windy night when the seed, later to bloom into a comprehensive caregiving model, was planted at an emergency meeting for a friend in the office of Dr. Sukie Miller.
Dr. Miller had strongly urged her patient, Susan Farrow, to reach out past her emotional comfort zone and ask her friends for help. Susan was a divorced, working mom with two teens and a painful bone cancer. To make matters worse she had no family nearby. However, by bringing what was a diverse bunch of friends together for some honest dialogue, we were able to plunge into action the very next morning.
We owe a huge debt to the insight, wisdom, and brilliance of Dr. Miller who truly understood the power of “group.” The 12 of us who attended that meeting went on to prove her right by supporting our friend in every way imaginable until she died nearly four years later. And we managed it without any one getting stuck doing too much. And best of all, we were bonded forever by this challenging yet significant life experience that resulted in us becoming widely known as “Susan’s Funny Family.”
Later, Dr. Miller was the chief cheerleader when Cappy Capossela and I decided to document our systems into a handbook that others could follow to create a “caregiving family” of their own. Dr. Miller offered her guidance and gifted us with the eloquent FORWARD to Share The Care, first published in 1995.
Then, out of the blue, in early 2002 Cappy was stricken with a brain tumor and needed her own Share The Care group. Following Cappy’s death later that year, Dr. Miller again provided her enormous enthusiasm and encouragement for my decision to make Share The Care more widely known by founding our organization. And, as a member of our Board of Advisors for the last 10 years, she was always generous with her suggestions.
Dr. Sukie Miller was a profound influence in my life. I think it was her fearless and optimistic outlook that will be most treasured by me and surely by so many others in different parts of the world whose lives she touched. We will all miss this vivacious, and extraordinary woman with so many far-reaching legacies.
SUKIE MILLER, Ph.D. was an early director of Esalen Institute, was a member of the Board of the Jung Institute of San Francisco and the Board of Medical Quality Assurance, the licensing board for the State of California. She had been a frequent consultant to Cancer and Social Action programs in Brazil.
In 1972 she founded and directed the pioneering Institute for the Study of Humanistic Medicine. One of the first researchers to study the cross cultural dimensions and implications of beliefs of the Afterdeath, her books Finding Hope When a Child Dies and After Death; How People Around the World Map the Journey After Life are published by Simon and Schuster.
Dr. Miller lived for years in Sao Paulo, Brazil where she continued to see clients with chronic and terminal diseases and worked extensively with groups.