RESOURCES

We offer links to RESOURCES that target a vast variety of specific illnesses, and challenges, as well as helpful information, services and support.

Click the booklet title to download this helpful Caregiving Booklet from EmblemHealth and NAC:
Care for the Family Caregiver: A Place to Start” in PDF format

Click on an organization’s name below to visit their websites.

AddictionResource.Net – Find the best Drug & Alcohol Rehab Center near you

A Place for Mom– Housing Resources

AARP – American Association of Retired People

AARP: Benefits – QuickLINK – Locate Public Benefits in your state

AARP: Prepare to Care – Planning Guide for Families – Booklet

Aging with Dignity – Five Wishes Document – An easy-to-use legal document that helps you express your wishes ahead of a serious illness

Alliance for Aging Research – Scientific Research

ALS Association – The Amyotrophic Lateral Sclerosis Association

ALS – MDA – MDA / ALS News Magazine Current Research

Alzheimers Association

Alzheimers Foundation

Alzheimers.net– Resources

American Academy of Hospice and Palliative Medicine (AAHPM) – to raise awareness of the benefits of hospice and palliative medicine, and help patients and families find the care they need

American Brain Tumor Association

American Cancer Society

American Childhood Cancer Organization

American Diabetes Association

American Diabetes Association: Statistics about Diabetes

American Heart Association

American Kidney Fund

American Liver Foundation

American Lung Association

American Parkinson Disease Association

Assisted living – Senior Care and Assistive Technologies Resources

Baylor University Online Graduate Program Resources – Older Adults and Food Insecurity and Hunger (comprehensive article)

Better Living Now – Healthcare products, programs and services

California Caregiver Resource Centers – Resource center for California caregivers

CAN – Caregivers Action Network

Cancer and careers

Cancer Decisions – research and alternative treatments

Cancer.net – Doctor-Approved Patient Information from ASCO

Caregiver Action Network

CaringBridge – free website for family/caregivers/patients

Caring Today – online magazine

Christopher & Dana Reeve Foundation – All about research and living with paralysis

Colon Cancer Alliance

Compassionate Care ALS

Corporate Angel Network, Inc. – Free flights on corporate planes for cancer patients

Disability.gov – Online Resource for People with Disabilities

DOROT – NY Seniors/caregivers/volunteers

Dying Matters

ElderCare Locator

Empowering Caregivers

Family Caregiver Alliance

Fighting Chance – life skills for cancer patients

Gail Sheehey (AARP)– The Labyrinth of Caregiving

Gathering Us – A free comprehensive memorial website that brings together communities after the loss of a loved one. Memorial, memories, videos, crowdfunding for expenses or donations, RSVP’s for gatherings, coordinate Volunteers and more.

Gay Men’s Health Crisis

Gift From Within– Post Traumatic Stress Disorder

Get Palliative Care – definition, information, and Provider Directory by state

Home Security List – How to make a home safe for loved ones with Alzheimer’s or Dementia

Hospice Foundation

Huntington’s Disease Society of America

Incredible Health – Alzheimer/Dementia Guide for nurses & nursing students

IPPF: International Pemphigus & Pemphigoid Foundation – information and support

Kidney Cancer Association

Kids Health – Cancer Center – Parent information

LeiomyosarcomaNews on causes and preventative treatments for Leiomyosarcoma

Leukemia & Lymphoma Society, The

Lupus

Medicare: The Official U.S. Government Site for People with Medicare

Medicare and Medicaid tools, information and materials – NEW!

Medicare Rights Center – A nonprofit consumer service organization that works to ensure access to affordable health care for older adults and people with disabilities that includes these sites:
— Medicare Interactive – Free online resource
— Medicare Rights University – Subscription based training resource for professionals

Mesothelioma – Mesothelioma Information Center

Mesothelioma and Asbestos Awareness Center

Multiple Sclerosis Association

Muscular Dystrophy Association

National Alliance for Caregiving

National Brain Tumor Society

National Cancer Institute

National Caregiving Alliance

National Council on Aging

National Hospice and Palliative Care Organization – advance directives, living wills

National Marfan Foundation

National Multiple Sclerosis Society

National Ovarian Cancer Coalition

National Resource Center on LGBT Aging – Lesbian, Gay, Bisexual and Transgender (LGBT) older adults

National Resource Directory – Services and resources for wounded, ill and injured service members, and veterans, their families and families of the fallen.

National Stroke Association

Navigating Grief: A guidebook for Grief Awareness & Understanding

New York City Family Caregiver Coalition

New York Foundation for Senior Citizens – (All NYC Boroughs) Free Emergency Respite for caregivers of Frail Elderly

NEXT STEP IN CARE – United Hospital Fund

NYC PARTNERSHIP 4 FAMILY CAREGIVING CORPS– Corporate caregivers

Parkinson’s Disease Foundation

Planet Cancer – Young adults and children with cancer

Presbyterian Senior Services – Circle of Care

Silvert’s – Adaptive dressing Solutions for Seniors and Adults with Disabilities

Social Securtity and Disability Resource Center – social security disability and SSI

SouthWesthealthline – Canadian Resources, Events and more

Spinal Cord Injury Information Network – resources for equipment/accessibility

Strength for Caring – the comprehensive web site of The Caregiver Initiative of Johnson & Johnson

Surviving Mesothelioma: A Patient’s Guide – Free copies of “Surviving Mesothelioma” are available to newly diagnosed mesothelioma patients

Susan G.Komen Breast Cancer Foundation

Today’s Caregiver Magazine

Theravive – network of therapists and counselors

Veteranaid.org – Eligibility Calculator for ‘Aid & Attendance Benefit’

Well Spouse Association – for spousal caregivers.

Wounded Warrior Project – Wounded Warrior Project is a military and veterans charity service organization empowering injured veterans and their families.